Fabry disease resources

The Canadian Fabry Association (CFA) is an organization that is committed to improving the lives of those who live with and are affected by Fabry disease in Canada. The CFA encourages and supports research into the causes, treatment and management of Fabry disease, but most importantly arranges for, coordinates and increases the facilities available for diagnosis, consultation and treatment of those suffering from Fabry disease.

The objective of the Canadian Fabry Association is to inspire hope and improve the quality of life for all those affected by Fabry disease through the support of research, public education, advocacy and awareness. Their vision is to inspire all those affected to “Live Well With Fabry.”

The National Fabry Disease Foundation (NFDF) is an organization dedicated to supporting the Fabry disease community.

Our 5 primary functions are assisting with Fabry disease education, facilitating Fabry disease identification to improve Fabry disease recognition and diagnosis, providing various forms of assistance to individuals with Fabry disease, supporting Fabry disease research and promoting advocacy for Fabry disease issues.

The Garrod Association was developed to establish a permanent Canadian body at the national level for the coordination of the management of inherited metabolic disorders.

The Garrod Association holds a symposium each year.